Save Sight Registries

The Save Sight Registries
The Save Sight Registries aim to analyse patient-centred outcomes of all the different ways eye diseases are treated around the world in order to identify which works best and how it can be used to get the best results for everybody.
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Fight Retinal Blindness (FRB!)
Investigates the safety and effectiveness of available and new drugs as they “hit the market” for retinal diseases, including macular degeneration, diabetic retinopathy and retinal vein occlusion. We are developing strategies which will reduce the incidence of retinal blindness.
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Treatment summaries
Graphs of long-term patient centred treatment outcomes such as vision on an eye chart and how it responds to different treatments over time can be generated at the push of a button by clinicians and shown to patients.
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Current Studies

Fight Tumor Blindness

Identifying best ways of treating ocular melanoma and assessing long-term prognosis for patients with ocular melanoma.

Fight Retinal Blindness

Identifying best ways to treat retinal diseases such as macular degeneration, diabetic retinopathy and retinal vein occlusion.

Fight Corneal Blindness

Identifying best ways to treat corneal diseases such as keratoconus and corneal failure.

Fight Glaucoma Blindness

Identifying best ways to treat glaucoma and evaluating the benefit and duration of new treatments such new glaucoma surgical devices

SAVE SIGHT REGISTRIES

Save Sight Registries are clinician managed web-based data collection tools that track and analyse the outcomes of treatments for eye diseases, delivering benefits to patients, doctors, governments and other stakeholders. Our reports provide a robust framework for public health programs, health interventions and health research. The Save Sight Registries were established in 2007 under the directorship of Professor Mark Gillies

The Fight Retinal Blindness! registry was launched to the Australian and international communities in 2010, the Fight Corneal Blindness! registry in 2015, the Fight Glaucoma Blindness! in 2017 and most recently the Fight Tumour Blindness! registry in late 2018.

Our current international partners include Switzerland, The Netherlands, Belgium, France, New Zealand, Spain, Singapore and the United Kingdom.

Save Sight Registries are endorsed by the International Consortium for Health Outcomes Measurement (ICHOM) as a preferred tool for the collection of the minimum data set for macular degeneration.

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The Save Sight Registries

Fight Retinal Blindness (FRB!)