USyd

Our Vision

To reduce the incidence of blindness worldwide by conducting research into patient treatment outcomes

Our Mission

The Save Sight Registries provides a web-based platform that allows clinicians to record data on “real world” treatment outcomes for eye diseases. The system, which was designed by clinicians for clinicians helps evaluate current and future treatments as they are released. 

Our registries are immediately relevant to clinicians, researchers, public health providers and policy makers seeking to fight blindness and improve patient outcomes in Australia and internationally. 

0
Countries​
0
Patients
0
Eyes
+ 0
Visits

Our Story

The Registries track long-term ‘observational’ data. Without observational data, which looks at treatment outcomes among the general population, we would not know if a treatment works in the long-term. Conducting observational research on patient treatment outcomes is one of the fastest and most cost-effective ways to improve outcomes at scale.

The Registries have more than ten years of high-quality recorded data on treatment outcomes for neovascular age-related macular degeneration. The Registries initially started as the Fight Retinal Blindness! project, established in 2009. Since then, the Registries have grown to track a wide range of eyes disease and their treatment outcomes, including: 

  • Choroidal neovascular age-related macular degeneration, retinal vein occlusion, diabetic macular oedema 
  • Keratoconus, dry eye disease
  • Glaucoma
  • Uveitis 
  • Inherited retinal diseases 
  • Ocular melanoma

Our Affiliations

The flagship Fight Retinal Blindness! project was developed as a collaboration between the Save Sight Institute at The University of Sydney, Centre for Eye Research Australia and Lions Eye Institute.

The neovascular age-related macular degeneration (nAMD) registry at the core of the Fight Retinal Blindness! project has been implemented successfully in public and private health settings in New South Wales, Victoria, Queensland, Western Australia, South Australia, the ACT and Tasmania, and internationally in New Zealand, Singapore and Europe.

Collaboration with international academic and private centres is expanding as participation grows internationally. Save Sight Registries welcomes into the fold the University of Zurich and Singapore Eye Research Institute.

Our Funding

Save Sight Registries are funded through a range of sources. Start-up funding was provided by The Eye Foundation (2008) with subsequent major research grants awarded by the National Health & Medical Research Council (2010)­ and ­­Macular Disease Foundation (2016). The funding underpins registry support, development and research activities. The Registries have also received funding from Novartis and Bayer. All support is provided on a non-binding basis either as a research or educational grant.

As a not-for-profit entity our work is contingent on the generous support of individuals and public and private sector organisations. We welcome your support in our shared fight against blindness.

Our Leadership

Mark Gillies

MB BS, PhD, FRANZCO

Director of Research, Save Sight Institute
Dept. of Ophthalmology & Eye Health, University of Sydney
Chief Investigator and Innovator, Save Sight Registries

Daniel Barthelmes

MD, PhD, EMBA, FEBO, FMH

Ophthalmology/Ophthalmic Surgery
Co-Investigator and Innovator Save Sight Registries
Director of the Department of Ophthalmology, University Hospital Zurich & University of Zurich

Stephanie Watson

BSc(Med) (Hons I), MBBS (Hons I), PhD, FRANZCO

Co-Investigator, Save Sight Registries
Fight Corneal Blindness!

Mitchell Lawlor

B.Med M.Med. FRANZCO PhD

Co-Investigator, Save Sight Registries Fight Glaucoma Blindness!

Richard Symes

B.Med M.Med. FRANZCO PhD

Co-Investigator, Save Sight Registries Fight Uveitis Blindness!

Matthew Simunovic

MB BChir PhD FRANZCO

Co-Investigator, Save Sight Registries
Fight Inherited Retinal Blindness!

Rod O'Day

MBBS, LLB, BSc, FRANZCO

Co-Investigator, Save Sight Registries
Fight Tumour Blindness!

Caroline Catt

BMedSci (Hons 1), BMBS, MMed, FRANZCO

Co-Investigator, Save Sight Registries
Fight Baby Blindness!

Hemal Mehta

MBBS, MD (Cantab.), FRCOphth, FRANZCO

Co-Investigator, Fight Retinal Blindness! Geographic Atrophy Registry Development

Ashley Kras

MBBS (HONS), MBI (bioinformatics), Dip. Arts, FRANZCO

Bioinformatics and Artificial Intelligence Advisor