SAVE SIGHT REGISTRIES PROJECT
Fight Childhood Blindness!
Fight Childhood Blindness! collects real world treatment data on conditions affecting the vision of infants and children, providing evidence on treatment outcomes and on the risks and benefits of different treatments. Its first module focuses on retinopathy of prematurity.
Watch: the Fight Childhood Blindness! registry
An introduction to the registry and why real world data matters for children’s eye health.
OVERVIEW
Real world evidence for retinopathy of prematurity
Retinopathy of prematurity (ROP) is a vision threatening disease caused by abnormal blood vessel growth in the developing retina of babies born prematurely. Each year, more than 30,000 babies worldwide develop vision impairment from ROP, including complete blindness.
The Fight Childhood Blindness! ROP registry is the first multinational ROP registry for babies outside Europe. It collects real world data on babies treated for ROP in an open access registry, so that analysis can show the outcomes, risks and benefits of the different treatments.
INVESTIGATOR
Leading Fight Childhood Blindness!
CO INVESTIGATOR
Dr Caroline Catt
BMedSci (Hons 1), BMBS, MMed, FRANZCO
Fight Childhood Blindness!, Save Sight Registries