Fight Uveitis Blindness!
FUB! Is the most ambitious of the Save Sight Registries to date. It will track data on the presentation, course, treatment and outcome of eyes affected by uveitis.
The Fight Uveitis Blindness! Registry
Uveitis is a group of inflammatory eye diseases that can affect people of all ages, ranging from young children to the elderly. Severe disease may cause visual loss or blindness. Despite this, there are few good quality publications relating to uveitis in the medical literature because individual uveitis syndromes are often relatively rare. Registry data will be particularly useful in the study of uveitis, allowing a large amount of data to be collected from multiple centres around the world.
FUB! will collect information on:
All forms of uveitis
Infective causes of inflammation e.g. endogenous bacterial and fungal infection
Masquerade syndromes including intraocular lymphoma
FUB will track:
SUN grading of inflammation
Diagnosis and diagnostic testing
Treatment: topical drugs, systemic drugs, intravitreal treatments, laser treatments and surgery
Response to treatment and outcomes
Complications of treatment
Longitudinal and graphical data for any given eye – this may be printed off and serve as a basis for completing the medical record
Research outputs: natural history of disease and response to treatment
The platform may be accessed online anywhere in the world. It is envisaged that this collaborative approach will allow a large quantity of useful information to be collected. This will make a significant difference to patient outcomes. The project will be ongoing so the dataset will continue to improve with time. There is already a great deal of interest from institutions in Australia and abroad and we have agreed to share the platform with Moorfields Eye Hospital, the largest ophthalmic centre in the world.
MB BS, PhD, FRANZCO
Co-Investigator, Save Sight Registries Fight Uveitis Blindness!