SAVE SIGHT REGISTRIES PROJECT

Fight Uveitis Blindness!

The most ambitious of the Save Sight Registries to date, tracking the presentation, course, treatment and outcome of eyes affected by uveitis.

OVERVIEW

Building the evidence base for uveitis

Uveitis is a group of inflammatory eye diseases that can affect people of all ages, from young children to the elderly, and severe disease can cause vision loss or blindness. Because individual uveitis syndromes are often rare, there are few good quality publications on them in the medical literature.

A registry lets a large amount of data be collected from many centres around the world. The platform can be accessed online from anywhere, the dataset will keep growing over time, and it is already shared with Moorfields Eye Hospital in London.

THE REGISTRY

Scope of the registry

The conditions included, the data collected for each eye, and what the registry produces.

CONDITIONS INCLUDED

All forms of uveitis

Scleritis

Infective causes of inflammation, such as endogenous bacterial and fungal infection

Masquerade syndromes, including intraocular lymphoma

DATA COLLECTED

Visual acuity

SUN grading of inflammation

Diagnosis and diagnostic testing

Treatment: topical and systemic drugs, intravitreal and laser treatments, and surgery

Response to treatment and outcomes

Complications of treatment

OUTPUTS

Longitudinal and graphical data for each eye, which can be printed to support the medical record

Audit data

Research on the natural history of disease and response to treatment

INVESTIGATOR

Leading Fight Uveitis Blindness!

Dr Richard Symes

CO INVESTIGATOR

Dr Richard Symes

B.Med M.Med. FRANZCO PhD

Fight Uveitis Blindness!, Save Sight Registries

Meet the full leadership team →