SAVE SIGHT REGISTRIES PROJECT
Fight Corneal Blindness!
Fight Corneal Blindness! collects high quality outcomes data from patients in the clinical setting, tracking the effectiveness and safety of emerging therapies and surgical techniques for corneal conditions such as keratoconus and dry eye, which can cause vision impairment, ocular discomfort or blindness.
OVERVIEW
Tracking outcomes in corneal and ocular surface disease
Fight Corneal Blindness! is one of the most advanced web based ophthalmic registries in the world, a sophisticated platform for tracking the long term effectiveness and safety of treatments for corneal diseases and ocular surface disorders.
It brings together three registries: the Keratoconus Registry, the Optometry Module of the Keratoconus Registry, and the Dry Eye Registry. Both ophthalmologists and optometrists can take part.
Why clinicians take part
THE REGISTRIES
Three registries, one platform
The FCB! project is made up of three registries, each tracking real world outcomes for a different corneal or ocular surface condition.
Dry Eye Registry
Established in 2020, the first international dry eye registry to include both ophthalmologists and optometrists, now used at 37 sites across 9 countries.
Data entry takes about three minutes. Users can collect patient reported outcome questionnaires (OSDI, OCI and VAS) in English, Spanish, German and Chinese.
Keratoconus Registry
The first module of the FCB project, tracking the natural history of keratoconus and the outcomes of corneal cross linking (CXL), corneal transplants, intracorneal ring segments and photorefractive keratectomy.
Established in 2015, it is now recognised as one of the world’s leading observational databases in keratoconus, helping determine the right timing and choice of treatment.
Optometry Module
Established in 2020 within the Keratoconus Registry, so optometrists can monitor the outcomes of their patients with keratoconus.
Outcomes can be benchmarked to identify opportunities to improve clinical care, and the module gives a framework for educating patients about their keratoconus journey.
INVESTIGATOR
Leading Fight Corneal Blindness!
CO INVESTIGATOR
Professor Stephanie Watson OAM
BSc, MBBS, FRANZCO, PhD, GAICD, FARVO
Director, Save Sight Institute, and Head, Corneal Research Group, University of Sydney